Spain Maria Begona Barragan Garcia, president of GEPAC – the Spanish Group of Patients with Cancer – discusses the necessity of the group and its role in Spain’s healthcare system, in addition to how the voice of the patients is now stronger than ever. GEPAC represents 88 different cancer organizations…
Opinion After her son was diagnosed with SYNGAP1 – an extremely rare gene mutation – Monica founded Bridge the Gap – SYNGAP Education and Research Foundation to support families of those suffering from the illness and to accelerate the path to better therapies. Here Monica discusses the incredibly low rate of treatment options for…
Patients The Director General of EFPIA (European Federation of Pharmaceutical Industries and Associations) discusses what they are doing to put patients at the forefront of their business. Actively listening to patient experiences, patient challenges and exchanging insights must shape how EFPIA develops its thinking, its dialogue with others, its policy…
Malaysia American medtech giant Baxter and pan-Asian healthcare service provider Zuellig Pharma have been collaborating in Malaysia to increase the quality and quantity of care that can be given to patients in their own homes, generating significant cost-savings for the healthcare system and increasing patient-centricity. “[Home care] reduces costs significantly,…
Patients There are around 2 billion people in the world that do not have access to the medicines they need. This week the 2018 Access to Medicine Index was published revealing that there is a handful of pharmaceutical companies developing the bulk of urgently needed new medicines for the poor. The…
Opinion Richard Saynor, Senior Vice President, Classic and Established Products at GSK urges big pharma to weigh in on improving global health and well-being to achieve the United Nations Sustainable Development Goals. On the part of pharmaceutical companies, we have a responsibility to help people gain access to high-quality healthcare and…
Patients At the 2018 Financial Times Pharmaceutical and Biotechnology Conference, there was a lot of buzz around ‘patient centricity’ and all of the big pharma companies were determined to broadcast their goals of having patients at front and centre throughout their business. Over the past decade, we have seen a dramatic…
Canada Brian Hilberdink, President of Novo Nordisk Canada, calls for collaboration between government and industry to ensure that Canadian patients get swift access to the best treatments. As a Canadian who spent several years working globally for a biopharmaceutical company, I saw firsthand how pricing and investment decisions can be made…
Innovation Patient groups oftentimes serve as the authority on a specific disease when it comes to advancing research. “Without patient perspective, there is no good medical product development,” Rachel Sherman, the FDA’s principal deputy commissioner proclaimed during her keynote at last week’s NORD’s Rare Disease & Orphan Products Breakthrough Summit.…
Mexico David Peña Castillo is the President and founder of The Mexican Federation of Rare Diseases (FEMEXER). Here he discusses what makes a patients association. When we find a way to communicate the complexities of rare diseases simply, we can avoid isolating anyone and the potential to uncover important information is…
Innovation Meghann Chilcott, Senior Vice President of OrderInsite, discusses the changing role of pharmacists and technicians. Patients are consumers, and they expect more from pharmacies than a collection of pill bottles. Local pharmacists have seen their roles continually change over recent years due to enhanced technology that allows them better…
Patients Photo Copyright: Olivier Corsan Alain-Michel Ceretti, president of France Assos Santé (the French Union of the Registered Associations for the Users of the Health System), tells us about his own battle against nosocomial infections and the role of the organization in the protection of patient rights. Why did…
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