Tagged with Patients,

USA Ahead of the 2020 US National Organization for Rare Disorders (NORD)’s Rare Diseases and Orphan Products Breakthrough Summit, NORD president and CEO Peter L. Saltonstall outlines his hopes for the Summit, the impact of COVID-19 on the US rare disease community, and touches on the current reality and potential problems…

USA Peter L Saltonstall, president and CEO of the US National Organization for Rare Disorders (NORD) shares the organization’s key priorities, what makes NORD a unique patient advocacy group in the US, prevailing access and affordability issues for American rare disease patients, and how the country should continue to incentivize a…

USA US healthcare is often seen as a fragmented system of contrasts. The country has the highest healthcare expenditures as a percentage of GDP and the highest drug prices in the OECD, supporting the largest and most innovative healthcare market globally. However, it also has shockingly subpar healthcare outcomes compared to…

USA Marc Boutin, JD, CEO of the National Health Council (NHC),* introduces the organization and its mission to provide a united voice for the 160 million people in the US living with chronic diseases and disabilities and their family caregivers. He addresses the challenge faced by patients living with chronic diseases…

China PharmaBoardroom sat down with more than 25 biotech CEOs in China in 2019. We analyzed the contents of the interviews and found the following recurring themes at the top of these executives’ minds.   “Patients” One recurring theme throughout the interviews was a stated commitment to patients. Many of these…

Sweden We recently analysed the contents of 20 interviews conducted with country managers at multinational pharma companies in Sweden and found some underlying words and themes present in the majority of the interviews (see above for the full wordcloud). This is an exclusive glimpse into what is currently at the top…

Puerto Rico Puerto Rico has long been known for its pharma manufacturing prowess, but multinational companies are increasingly looking to conduct clinical trials there, thanks to strong institutional support, a strong example set by R&D-focused university spin-off companies, and the island’s unique ethnic profile.   The Hispanic population has been historically underrepresented…

USA David Mitchell, founder of Patients for Affordable Drugs, looks at the US pharmaceutical industry from the patients’ perspective.   This is both a hopeful and terrifying time to be a patient in the USA What are the key factors and trends shaping the pharmaceutical sector in the US? I have…

France Françoise Alliot-Launois, VP of the French League Against Rheumatism (AFLAR), discusses the issues around bone and joint infections in France, AFLAR’s work to help patients suffering from these diseases, and the broader role of patient associations within the French healthcare ecosystem.   In France, 20 million people are suffering from…

Opinion Deloitte’s Global Life Sciences & Health Care industry leader, Greg Reh gives us an exclusive insight into their forecast for 2019’s industry trends.   For companies to address mounting pressures, a digital-first mindset will be required to make business operations more efficient and bring transformational therapies to the market.   Digital…

Opinion Our contributor at large, David Crean, Managing Director for Objective Capital Partners, attended J.P. Morgan’s 2019 Health Care Investor Conference, one of the biggest events in the life sciences calendar and a fantastic indicator of what is to come in healthcare for the year ahead. Here, Crean gives us the inside scoop. …

Patients The Director General of EFPIA (European Federation of Pharmaceutical Industries and Associations) discusses what they are doing to put patients at the forefront of their business.      Actively listening to patient experiences, patient challenges and exchanging insights must shape how EFPIA develops its thinking, its dialogue with others, its policy…